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PANS PANDAS UK

Administration Manager

PANS PANDAS UK

Charity
Started 1 activity
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Administration Manager

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition. 

 

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for Medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for Young People age 12-17 with the condition. 

Facebook group for Adults 

Links to further Research 

Advocacy and support from the charity 

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.   One estimate suggests that up to 1 in 200 children suffer from this condition.    Resources for parents including diagnostic criteria...

PANS PANDAS UK has been a valued Devon Connect member for 1.5 years.

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PANS PANDAS UK's activities

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Listing - PANS PANDAS UK Charity

PANS PANDAS UK
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated ... Read more
  • 300 days remaining
  • No disabled access
  • Free at point of access, supported through the PANS/PANDAS UK Charity.
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